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Nolan and ”Ensemble avec Nolan” Association

Texte traduit par / Text translated by  : Franck Goethals – “Les Traductions du Sillon” 

Nolan was born on January 22nd, 2010.

His relatives quickly discovered there was a real problem with his motor development. After numerous examinations, a diagnosis was made: Nolan suffers from a particular kind of leukodystrophy called “Canavan disease”. This neurodegenerative disease is often lethal during childhood.
Nowadays, Nolan is 6 years old, and there is no treatment to help him. His parents have decided to found an association to collect founds and move to the USA, where medical reasearch is slightly more advanced.
Fund-raising actions have been set up since then: motorbike rides, theme parties, concerts, sport events, dinner and dance events, etc

 

Website : www.ensemble-avec-nolan.fr
Facebook Fan Page : Association Nolan Clouet
Twitter : @ClouetNolan
Email : ensemble-avec-nolan@orange.fr

Nolan

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